How to Empower Yourself as a Patient

At Jacksonville Nephrology, we believe that an empowered patient is more involved in their care and will subsequently make better, more informed decisions regarding their care. Here are 6 ways that you can empower yourself as a patient.

1. Ask questions at your appointments. Your doctors and care team should be open and honest with you and be willing to answer any questions you may have. Some questions to ask may include:
   1. What are the potential risks and benefits of this treatment?
   2. Are there any alternatives to this treatment? What are my other options?
   3. What can I expect in the future with this condition and treatment plan?
   4. What is the best case scenario? Worst case scenario? Most realistic? How can I manage my expectations?
   5. Are there any side effects?
   6. When should I expect to see a change?
   7. How might this affect my lifestyle?
2. Do independent research on your condition(s). It is important to do research and educate yourself to gain a better understanding of what you may be facing. You can also ask your doctor for trusted resources regarding your diagnosis, condition, or treatment. In general, we advise staying away from forums and sticking with trusted sites, such as medical society pages. Here are some examples:
   1. https://www.kidney.org/​
      
   2. https://www.acc.org/
      
   3. https://www.endocrinology.org/
      
   4. https://www.dcmsonline.org/
      
3. Advocate for yourself and your beliefs. You are able to decline treatments, medications, and medical advice if they go against your beliefs. Your care team will go over their advice, offer alternatives, and educate you on their reasoning, recommendations, and risks. 
4. Read your bills and explanation of benefits. Understanding your insurance and bills can be a daunting task. By reading your bills and explanation of benefits, you may be better able to understand your financial responsibility and better plan for future procedures and insurance changes in the future. 
5. Ask for clarification. If you don’t understand what is being said, ask for clarification. Any and all procedures, treatments, and appointments should be explained to you in a language and terms that you understand. 
6. Self-care is key. Remaining calm and relaxed when going to appointments or dealing with anything health related is a crucial part of empowering yourself as a patient. Self-care that may be beneficial can include:
   1. Positive affirmations
   2. Relaxation apps
   3. Deep breathing exercises
   4. Talking to supportive friends and family
7. Surround yourself with people that support you. A strong network of love and support can help to ease the burden of facing changes alone.

We are here to help you make the best decisions for yourself. Stay safe and healthy. Be empowered.

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